The Utah Prader-Willi Syndrome Foundation holds a picnic every year to raise money so the kids can have typical adventures they're often denied. Last year, 800 people attended, and they were able to send several teenagers with the syndrome to Camp Kostopulos, where they were able to maintain controlled eating habits and have a blast because they could support each other.
This year, the event is April 28 in the southeast terrace of Sugarhouse Park from 1-3:30 p.m., and everyone is welcome. Parents who are just learning of Prader-Willi or who have a child with either a new diagnosis or symptoms can meet other families affected by the syndrome and learn some coping tips.
The groups also maintains a Web site, www.upwsa.org.
The national site, rich with information on the syndrome, is www.pwsausa.org.